Wish this book was available 23 years ago! | Childhood Leukemia (Patient-Centered Guides) | Nancy Keene
 
 


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Childhood Leukemia (Patient-Centered Guides)
Nancy Keene

Patient Center Guides, 1997 - 564 pages

average customer review:based on 25 reviews
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   highly recommended  highly recommended






Childhood Leukemia

A great help. Full of factual information and practical tips from parents who've "been there." It's a valuable resource for those of us who have a child who has been diagnosed with leukemia.


For any Parents whose child is diagnosed with Leukemia

Our Son was diagnosed in April of 2006 with ALL Leukemia. Trying to understand all of the terms, meds and schedules is hard enough. This book is written by a Mom with the help of her Doctor's expertise. It puts very scary helpless feelings in laymen's terms. This Mom goes into detail on how to comfort and successfully treat your child. She gives you her experiences on what works and what doesn't and what to expect. It is also an up- to- date book, whereas many books were written years ago. As a Mom who has gone thru 7+ months of this diagnosis, I wish someone would have given me this book the moment our Son was diagnosed. It's great for the whole family to read as well.


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Wish this book was available 23 years ago!

I have been a survivor of ALL Leukemia for 23 years now, and really wish there were books like this then. But now is when all these books are coming out, I am trying to find a book or information on how long term survivors can cope with the long term issues we face.

Topics like planning for college, buying a home, saving for retirement. These are issues my mother addressed with me, and now it is too late to start addressing these issues for me. For others it is not to late. We are surviving longer, and this is a new arena for the doctors and social workers need to address.


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A "Must-Have" for the family

I was loaned the 2nd Edition in the hospital after our son was diagnosed with ALL. This book is so valuable to the family to help you learn and weather through all the processes you could face during this difficult time. I knew I had to have my own copy and bought a second copy of the 3rd edition to share with other families through the hospital. Many other members of our family intend to buy their own copies of the book as well.

If you are hungry for information, buy this book. It calmed my nerves and made me a better team member in my son's fight against cancer.


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A Necessary and Informative Guide on Chilldhood leukemia

As a grandparent of a recently diagnosed 3 year old with ALL leukemia I have found this book an important resource for me to understand the treatment for this terrible disease. The descriptions of the types of chemo used and its side-effects have been particulalry valuable during the early months since the diagnosis. The book is comprehensive with all aspects of the disease and is full of anecdotal and suggestions for coping with this disease at all phases of treatment. It also offers lists of available resources to be accessed. I highly recommend this book for parents, family members and caregivers.


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This most complete parent guide available covers not only detailed and precise medical information about leukemia and the various treatment options, but also day-to-day practical advice on how to cope with procedures, hospitalization, family and friends, school, social and financial issues, communication, feelings, and, if therapy is not successful, the difficult issues of death and bereavement. Woven among the medical details and the practical advice are the voices of parents and children who have lived with leukemia and its treatments. As many parents have already found, advice from "veteran" parents can be a lifeline.

Obtaining a basic understanding of topics such as medical terminology, how drugs work, common side effects of chemotherapy, and how to work more effectively with medical personnel can only improve the quality of life for the whole family suffering along with their leukemic child. Having parents describe their own emotional ups and downs, how they coped, and how they molded their family life around hospitalizations can be a tremendous comfort. Just knowing that there are other kids on chemotherapy who refuse to eat anything but tacos or who have frequent rages can make one feel less alone.

Parents who read this book will encounter medical facts simply explained, advice to ease their daily life, and tools to be a strong advocate for their child.


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