book: Elegy for a Disease: A Personal and Cultural History of Polio

book: Elegy for a Disease: A Personal and Cultural History of Polio | Anne Finger ...

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	• Elegy for a Disease: A Personal and Cultural History of Polio Anne Finger St. Martin's Press, 2006 - 304 pages average customer review:based on 1 review view larger image
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Top notch, both as memoir and polio primer

This is a fascinating read, both as a primer on the nearly forgotten scourge that polio was up until fifty years ago, and also as a look into a tumultuous and difficult life. Anne Finger wasn't just coping with being a polio victim from early childhood, she also had to deal with a violently abusive parent in her father, who may well have been an undiagnosed bipolar/schizophrenic. Finger describes in frightening detail her long-suppressed memories of being choked and beaten by her father, behavior which was ignored or rationalized by her "enabler" mother. She also notes that her own clinical depression and suicidal tendencies as a young adult may have been inevitable, given her upbringing. In spite of all this, she continued to struggle for understanding of her parents' behavior, linking it often to her "imperfection" of being a polio from early childhood. There is much critically important information on polio - its history and near-eradication - here too, making it an important document in the literature of the disease. Finger has obviously done her homework, making numerous references to other talented polio memoirists and historians such as Leonard Kriegel, Charles Mee, Tony Gould, Peg Kehret, Daniel Wilson, John Paul and Wilfred Sheed, as well as other lesser known writers. This is an important and eminently readable book. - Tim Bazzett, author of Love, War & Polio

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During the first half of the twentieth century, epidemics of polio caused fear and panic, killing some who contracted the disease, leaving others with varying degrees of paralysis. The defeat of polio became a symbol of modern technology?s ability to reduce human suffering. But while the story of polio may have seemed to end on April 12, 1956, when the Salk vaccine was declared a success, millions of people worldwide are polio survivors.
In this dazzling memoir, Anne Finger interweaves her personal experience with polio with a social and cultural history of the disease. Anne contracted polio as a very young child, just a few months before the Salk vaccine became widely available. After six months of hospitalization, she returned to her family?s home in upstate New York, using braces and crutches. In her memoir, she writes about the physical expansiveness of her childhood, about medical attempts to ?fix? her body, about family violence, job discrimination, and a life rich with political activism, writing, and motherhood.
She also writes an autobiography of the disease, describing how it came to widespread public attention during a 1916 epidemic in New York in which immigrants, especially Italian immigrants, were scapegoated as being the vectors of the disease. She relates the key roles that Franklin Roosevelt played in constructing polio as a disease that could be overcome with hard work, as well as his ties to the nascent March of Dimes, the prototype of the modern charity. Along the way, we meet the formidable Sister Kenny, the Australian nurse who claimed to have found a revolutionary treatment for polio and who was one of the most admired women in America at mid-century; a group of polio survivors who formed the League of the Physically Handicapped to agitate for an end to disability discrimination in Depression-era relief projects; and the founders of the early disability-rights movement, many of them polio survivors who, having been raised to overcome obstacles and triumph over their disabilities, confronted a world filled with barriers and impediments that no amount of hard work could overcome.
Anne Finger writes with the candor and the skill of a novelist, and shows not only how polio shaped her life, but how it shaped American cultural experience as well.

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