Heart-breaking and uplifting at the same time | Schuyler's Monster: A Father's Journey with His Wordless Daughter | Robert Rummel-Hudson
 
 


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Schuyler's Monster: A Father's Journey with His Wordless Daughter
Robert Rummel-Hudson

St. Martin's Press, 2008 - 288 pages

average customer review:based on 20 reviews
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   highly recommended  highly recommended






A Must Read

Simply put, Robert Rummel-Hudson's Schuyler's Monster is a must read for every parent and educator. With raw emotion, he tells the story of his family's journey through the maze of parenting a child who appears perfect and yet somehow, something is not quite right. Rummel-Hudson doesn't hold back, he writes honestly about his wife's and his own efforts and reactions, as well as those of all the professionals that they encounter along the way. In doing so, he has created an accurate picture of the limitations of the medical and educational services available to some. Unfortunately, many people don't even have that.

As a special education teacher for 27 years, I hate to admitted that 30 years after PL 94-142 was passed, we don't have more to offer. Public education will always be a work in progress. Perhaps Schuyler's story will help move that work in the right direction. Which is why you need to read it.

You say your not a nonfiction reader? Never fear, this book reads like a novel. Rummel-Hudson keeps the story moving, making it interesting, entertaining and humorous. Warning! You may just become a dedicated blog reader, so you can keep up with Schuyler's journey.



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couldn't put it down

I found this book in the Black Oak bookstore on a recent day trip to Berkeley with my youngest daughter (the one who was never 100% neurotypical), and it's turned out to be the best possible souvenir of a wonderful day. Unfortunately, thanks to Robert Rummel-Hudson and his improbably funny, engaging style (how many books about neurological disorders and fights with special education administrators can lay claim to having many laugh-out-loud moments??), I've gotten no housework, homework, cooking, cleaning or other reading done in the three days since I acquired the book--and I got a lot of funny looks from the other parents at the neighborhood water park today, as I sat, happily oblivious to the periodic spray of water cannons, laughing wildly like Schuyler over my book while my kids played nearby. Thank goodness the author keeps a blog, so now that I've finished the book I don't really have to say a final goodbye to him or to Schuyler--I can just keep tabs on them periodically, and make sure they're doing okay and continuing to thrive in Plano.


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Heart-breaking and uplifting at the same time

This is a story of tragedy, love and the humorous foibles of life. It is also expertly written, easily approachable and best of all, thoroughly enjoyable.

I initially wondered whether I'd walk away from it more forlorn than uplifted, but that wasn't the case. Schuyler, by simply being her beautiful, innocent self, proves that life does indeed go on, and that although pain might exist, so does joy, gratitude and hope.

Highly, highly recommended.




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Schylers Monster

This is a beautifully written story I would recommend to anyone. It had personal meaning to me as I have a child with special needs.


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great book

I couldn't put this book down. I'm pretty picky about what I read and this was a beautifully written story, worth every minute I spent with it.


Schuyler?s Monster is an honest, funny, and heart-wrenching story of a family, and particularly a little girl, who won't give up when faced with a monster that steals her voice but can?t crush her spirit.
When Schuyler was 18 months old, a question about her lack of speech by her pediatrician set in motion a journey that continues today.  When she was diagnosed with Bilateral perisylvian polymicrogyria (an extremely rare neurological disorder caused by a malformation of the brain.), her parents were given a name for the monster that had been stalking them from doctor visit to doctor visit and throughout the search for the correct answer to Schuyler's mystery. Once they knew why she couldn?t speak, they needed to determine how to help her learn. They didn?t know that Schuyler was going to teach them a thing or two about fearlessness, tenacity, and joy.

Schuyler?s Monster is more than the memoir of a parent dealing with a child?s disability.  It is the story of the relationship between a unique and ethereal little girl floating through the world without words, and her earthbound father who struggles with whether or not he is the right dad for the job.  It is the story of a family seeking answers to a child?s dilemma, but it is also a chronicle of their unique relationships, formed without traditional language against the expectations of a doubting world.  It is a story that has equal measure of laughter and tears. Ultimately, it is the tale of a little girl who silently teaches a man filled with self-doubt how to be the father she needs. Schuyler can now communicate through assistive technology, and continues to be the source of her father's inspiration, literary and otherwise.

 


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